Hi
I can't help with the social model perspective but can recommend a
documentary I recall seeing. I hope that recommending a video is not
insensitive. I recall the program had the rather quirky title of "Shake,
Rattle and Roll". I don't recall where it was made either I'm sorry. All I
recall is the name and that it showed various case studies and was really
quite interesting and informative.
At 04:52 PM 18/02/2003 +0000, Mitzi Waltz wrote:
>Sarah asked:
> > HI, I wondered if anyone knows of any social model stuff on
> > turettes or on
> > people with tics and twitches? Similarly on intrusive thoughts?
> > Thanks,Sarah.
>
>I've tried to slot it into my own work on Tourette's
>& OCD, but my stuff on the topic is found in the
>"self-help" section, not in academic volumes.
>The most applicable thing I can think of is Howard
>Kushner's "A Cursing Brain?: The Histories of
>Tourette Syndrome". It's a sociomedical history of TS
>that looks at shifting models of the condition.
>Although the writing isn't as sparkly as it could be,
>considering the great material he collected to work
>with, it's well worth reading. Many good examples of
>how acceptance of a specific model (in this case, one
>based on Freudian psychology, i.e., tics as a
>substitute for compulsive masturbation or emergence
>of suppressed inner conflict) by practitioners meant
>denial of the lived experience of people with TS--as
>well as rejection of medical evidence that might have
>been beneficial to those who find the condition
>disabling. Kushner also did a great job of looking at
>how a condition, and even a condition's history, is
>"constructed."
>I encourage picking it up, so I won't give a
>spoiler...but if you've ever read one of those one-
>paragraph canned histories of Tourette's that starts
>with Mr. de la Tourette's supposed observation of
>the "cursing Marquise," what you've read is falsified
>history.
>TS actualy provides a good lens for examining the
>social model...in the majority of cases, the
>condition causes little actual impairment, but the
>reaction of others to even quite minor tics can be
>tremendously disabling. For example, I'm familiar
>with a US court case (Cohen v. Boston University) in
>which a woman with TS was studying for a master's
>degree in social work. She took a leave of absence,
>during which she was actually doing work as a
>disability advocate, and was refused admission to the
>program on her return because of her disability (the
>quote from one of the people who made this decision
>was "If she is still uttering in this manner, I do
>not see a place for her in clinical social work.")
>This decision was upheld by the US courts. I do know
>the woman in question has gone on to a career in
>disability advocacy, despite having fairly severe TS
>symptoms, but it's one of those cases that really
>makes your blood boil...
>So far as OC behaviours go, Ian Osborne's "Tormenting
>Thoughts and Secret Rituals" has some good bits. I
>also read a slim book called "Stigmata" some years
>back (can't recall the author) that looked at
>manifestations of OC behaviours in a sociocultural
>context--in this case, the experience of stigmata,
>religious obsessions and specific forms of anorexia.
>Hope these suggestions are helpful.
>-- Mitzi Waltz
>
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Best Regards
Laurence Bathurst
University of Sydney
School of Occupation and Leisure Sciences
PO Box 170
Lidcombe NSW 1825
Australia
Ph: 61 2 9351 9509
Fax: 61 2 9351 9197
Mobile: 0407 069 441
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Work for a living - Leisure for a life
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