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DISABILITY-RESEARCH  January 2003

DISABILITY-RESEARCH January 2003

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Subject:

Re: An open-debate on NeuroDiversity ! No Labels,

From:

David Quarter <[log in to unmask]>

Reply-To:

[log in to unmask]

Date:

Mon, 20 Jan 2003 11:15:56 -0500

Content-Type:

text/plain

Parts/Attachments:

Parts/Attachments

text/plain (422 lines)

  This is SO insulting...

<<<<The heart of the matter that people with hidden impairments
and found it
is good to be impaired, more money more help more status, and
as the new
kids on the block, are arrogant to consider themselves fully signed
up
members of the disabled community!>>>>



Date sent:              Mon, 20 Jan 2003 07:22:46 -0000
Send reply to:          Simon Stevens <[log in to unmask]>
From:                   Simon Stevens <[log in to unmask]>
Subject:                Re: An open-debate on NeuroDiversity ! No Labels,
To:                     [log in to unmask]

> Larry,
>
> You are talking about impairment not disability. Not everyone who has an
> impairment is disabled, basic social model. Hidden impairments has
> attempted to invent their own oppression, often at the cost of other
> impairment groups. I have attended conferences where real disabled
> people were ignored and abused because the dyslexics needed their yellow
> paper and 4.5 minute eye breaks. Other access issues were not important.
>
> In UK disabled student politics, real disabled people has been pushed
> out by dyslexics, diabetics and unknown mental health history we must
> not mention while CP, spinal injureies etc are put the scrap heat since
> they don't count. In Higher Education, real disabled are less likely to
> go to university because the disabled budget has been all spent on
> dyslexia which could be solved in one minute if lecturers did not make
> people down.
>
> I am not sure where in my company's site it mentions dyslexia. Enable
> Enterprises is my company and aims to help disabled people maximize
> their life opportunities. Many of the people I work with have severe and
> profound impairments which they do not even have the right to complain.
>
> As a academic and this is too everyone, apart from helping yourselves,
> what have you personally done for another disabled person? Is not
> academia merely invested new impairments to keep them in work because
> they has unable to work in the real world? Is it now true that academia
> has no interest in the lifes of disabled people accept the pay cheque?
>
> I have been quiet for too long. If you want to feel oppressed find your
> own corner, don't invade and abused the social model and the experiences
> of being disabled people because it is fashionable to feel different.
>
> The heart of the matter that people with hidden impairments and found it
> is good to be impaired, more money more help more status, and as the new
> kids on the block, are arrogant to consider themselves fully signed up
> members of the disabled community! Well, I say until you can learn to
> share and appreciate the good things in life... I certainly not
> welcoming these nbon-disabled immigrates to the community, this fragile
> community which is so easier ready to explode or be killed off once Bush
> starts his real mass murder agenda.
>
> I am insulting or merely addressing the balance. This neurodiverse
> debate has be protected by people's fear of being labeled as
> discriminatory. I am prepared to say what I feel since I would to die
> natural in many years time, not in a gas chamber because I been made
> redundant by a more fashionable non-disabled impairment.
>
> In the big world, I think I am speaking for a silient majority who been
> prepared so tolerate this game... it is time the neurodiversity movement
> stopped taking over and started finding its place in society and
> disability!
>
> Many Thanks, Simon
> -
>
> Simon Stevens
> Managing Director, Enable Enterprises
> [log in to unmask]
>
> NEED INSTANT ADVICE?
> CALL 247 INSTANT ON 090 904 80000 (£1 PER MINUTE)
>
> PO Box 1974, COVENTRY, CV3 1YF
> Tel: +44(0)24 7644 8130 (Sales 0800 358 8484)
> Fax: +44(0)870 133 2447
> IM: enableenterprises (Yahoo/AOL) simonenable (MSN) 155158793 (ICQ)
>
>
> Personal site: www.simonstevens.com
> Company shop: www.enableenterprises.com
> Free Newsletter: www.contactexpress.biz
>
> Join our FREE newsletter, send blank email to [log in to unmask]
>
>
>
>
> -----Original Message-----
> From: The Disability-Research Discussion List
> [mailto:[log in to unmask]] On Behalf Of Larry Arnold
> Sent: 20 January 2003 06:34
> To: [log in to unmask]
> Subject: Re: An open-debate on NeuroDiversity ! No Labels,
>
> It is hard for me to reply to this without saying something that will
> sound
> insulting
>
> However what give yu the right to decide what is and is not a different
> brain,
> I wonder why on your own enable enterprises site you include dyslexia in
> an
> alphabetical list of "disabilities" as well as a first hand account if
> you
> continue to maintain on this list an opinion on dyslexia which was
> prevelent
> maybe forty years ago when I was being educated. There is ample
> scientific
> evidence now to show the differences in the brain that cause the range
> of
> areas to be affected that are in dyslexia, it is more complex than just
> being slow to lern to read, even when one has lernt to read, apparantly
> one
> uses a diferent part of the brain,.
>
> I suppose you regard the concessions I have to use a computer in
> examinations an excuse for laziness ?
>
> AS for autism, do you seriosly assert that this does not exist and
> indeed
> persist until adulthood.
>
> I forgot to mention my own asthma, since you bring asthma up. Yes mine
> is
> mild but it killed my mum. If you were denied treatment for you asthma
> it
> could kill you too.
>
> If you are trying to advocate and promote disabilty awarness through
> this
> enable enterprises of yours I think that some real awarness training
> will be
> necessary after you have left and confused the issue with disregard for
> any
> condition but one you have direct experience of.
>
> I am not demanding a lable what I am doing is introducing an alternative
> to
> medical lableing originated by people with these conditions not
> academics or
> medics or social security or anyone else,
>
> Ones essential right to call oneself what one wants, I don't call myself
> disabled, it is other people that call me that, within the academic and
> medical system.
>
> Where I make common cause with other impairments I do not experience
> directly is in experiencing the bureocracy the discrimination.
>
> What would you feel like if someone told you that because CP originated
> in
> the brain it did not really exist and you are refusing to lern to move
> properly.
>
> You do not only insult me with your mono focus you insult anyone with a
> different "impairment to yourself"
>
> Because blind people do not wave there arms and wear diapers and
> helmets I
> suppose they do not pass your rigid criteria for a real disability
> either
>
> I suppose my mother was not "impaired" by your model either because she
> was
> not speech impaired and did not need a helmet although she needed
> assistance
> with everything else.
>
> I would suppose too that tardive dyskinesia an iatrogenic condition
> caused
> by over use of neuroleptics often forced on neuro diverse people, not to
> say
> compulsory detention in mental wards were not a form of oppression and
> never
> happened ?????
>
> Fortunately I believe your opinions are in the minority but usually they
> are
> expressed by people outside of the disabilty movement not those who
> claim to
> be within it which is what makes your position so untenable
>
> Larry
>
> > -----Original Message-----
> > From: The Disability-Research Discussion List
> > [mailto:[log in to unmask]]On Behalf Of Simon Stevens
> > Sent: 20 January 2003 00:37
> > To: [log in to unmask]
> > Subject: Re: An open-debate on NeuroDiversity ! No Labels,
> >
> >
> > Dear all,
> >
> > This is probably the email that will see me and the whole of reality
> > gets kicked off trhis life and given up to the socialism PC world may
> > non-disabled self-oppressive impairment and academic corruption rules.
> >
> > Firstly, for those who are ignorant of impairment, cerebral palsy
> means
> > brain damage and is the ultimate form of real neurodiversity! I
> > therefore challenge anyone to have a more diverse brain than myself,
> any
> > speech impaired, arm waves, diaper wearing, helmet using spastics
> there.
> >
> > I rather remember dyslexia was bad teaching and this modern
> fashionable
> > form of autism was such a slow personality. If I wanted to, I could
> > mention my asthma, my GERD and ingrowing toe nails.. but I don't need
> to
> > use them since I don't have to excuse my actions.
> >
> > Right, I personally find it deeply offensive when people with mild
> > dyslexia and this so-called autism, all in the name of diversity claim
> > oppression and discrimination when they have no clue what it is,
> > especially when they get a fat cheque for claiming to have an academic
> > interest in disability when you want to kill real disabled off and
> keep
> > the money for themselves.
> >
> > That me take you away from the comforts of non-disabled pretend
> > impairments for a moments and tell you about me day! I am an advocate
> > for people with severe impairment. While I should be paid, I am not
> and
> > do it off my own back without any support from professionals, they too
> > busy claimed their rights as the patronizing minority.
> >
> > This morning, I had to explain a wet dream to an 19 year old who had
> > been denied any sex education. This evening, I have someone else
> staying
> > with me because he has been abused and unlawfully imprisoned by his
> > carer and had his care package collapse. They do not the luxury to
> > claiming a new name and all they have is me!
> >
> > How can an American accuse me of reinforcing the medical model when
> > Americans do not have a understanding of the medical/social model?
> >
> > I am insulted because real disabled have fought for years to avoid
> > labels and now non-disabled people demand labels to improve their
> social
> > status.
> >
> > The fact is this list is self-indulance and helps no one in the real
> > world. Neurodiversiy in my opinion is merely of non-disabled people
> > pushing disabled people out of society by claiming their fashion
> > statement difficulties gives them the right to dicate our believes and
> > policy and get paid to do it.
> >
> > Are disabled people allowed to control their movement or should be all
> > now obey the well of the non-disabled impaired?
> >
> > People should consider their positions and ask themselves our their an
> > allie or user of disabled people?
> >
> > I am been quiet for too long, its time things change.
> >
> >
> > Many Thanks, Simon
> > --
> >
> > Simon Stevens
> > Managing Director, Enable Enterprises
> > [log in to unmask]
> >
> > NEED INSTANT ADVICE?
> > CALL 247 INSTANT ON 090 904 80000 (£1 PER MINUTE)
> >
> > PO Box 1974, COVENTRY, CV3 1YF
> > Tel: +44(0)24 7644 8130 (Sales 0800 358 8484)
> > Fax: +44(0)870 133 2447
> > IM: enableenterprises (Yahoo/AOL) simonenable (MSN) 155158793 (ICQ)
> >
> >
> > Personal site: www.simonstevens.com
> > Company shop: www.enableenterprises.com
> > Free Newsletter: www.contactexpress.biz
> >
> > Join our FREE newsletter, send blank email to [log in to unmask]
> >
> >
> >
> >
> > -----Original Message-----
> > From: The Disability-Research Discussion List
> > [mailto:[log in to unmask]] On Behalf Of Larry Arnold
> > Sent: 19 January 2003 14:14
> > To: [log in to unmask]
> > Subject: Re: An open-debate on NeuroDiversity ! No Labels,
> >
> > I am not sure if your post to me will eventually find its way to this
> > gruop
> > where the debate should be contained.
> >
> > But I find it insulting that you claim to know more about autism than
> I
> > do.
> > I do not make the same claims for CP
> >
> > The world has moved on in terms of what defines autism and I can
> assure
> > you
> > that the problems are real enough if you look at employment education
> > and
> > social value
> >
> > You are exemplifiying in your subjective and highly personal decision
> as
> > what is contained within the domain of disability.
> >
> > (satirical post follows) Lets start up a debate between hering
> > impairment,
> > and visual impairment as to who is worst off in society. Lets start a
> > debate
> > as to what vertebral fracture is the least that qulaifies one for
> spinal
> > injury status.
> >
> > Let us declare that oh never mind I have lost it .......
> >
> > Larry
> >
> > > -----Original Message-----
> > > From: The Disability-Research Discussion List
> > > [mailto:[log in to unmask]]On Behalf Of Simon
> Stevens
> > > Sent: 19 January 2003 12:48
> > > To: [log in to unmask]
> > > Subject: Re: An open-debate on NeuroDiversity ! No Labels,
> > >
> > >
> > > Dear all,
> > >
> > > I have attempted to understand with neurodiversity with little
> > success.
> > > It sounds like a self-defined impairment which people who want their
> > > social problems to be excused and medicalised to reduce their
> > > responsility.
> > >
> > > I have cerebral palsy and is as real as a glass of wing, and no
> matter
> > > of socialist imagination will stop of fact I have an real impacted.
> I
> > > accept many new impairments are just made up so non-disabled people
> > make
> > > an mockery of disability and impairment. I am happy and proud of my
> > > labels!
> > >
> > > I wish people would stop pretending to have impairments that doesn't
> > > exist since I feel it is making a mockery of disabled people. Has
> the
> > > social model been scraps in preference to an stronger medical model?
> > >
> > > I personally not letting my life be put on the life because other
> > people
> > > want to take the pissed and demand cures for make believe.
> > >
> > > Many Thanks, Simon
> > >
> > > --
> > >
> > > Simon Stevens
> > > Managing Director, Enable Enterprises
> > > [log in to unmask]
> > >
> > > NEED INSTANT ADVICE?
> > > CALL 247 INSTANT ON 090 904 80000 (£1 PER MINUTE)
> > >
> > > PO Box 1974, COVENTRY, CV3 1YF
> > > Tel: +44(0)24 7644 8130 (Sales 0800 358 8484)
> > > Fax: +44(0)870 133 2447
> > > IM: enableenterprises (Yahoo/AOL) simonenable (MSN) 155158793 (ICQ)
> > >
> > >
> > > Personal site: www.simonstevens.com
> > > Company shop: www.enableenterprises.com
> > > Free Newsletter: www.contactexpress.biz
> > >
> > > Join our FREE newsletter, send blank email to
> [log in to unmask]
> > >
> >
> > www.jiscmail.ac.uk/lists/disability-research.html
> >
> > You can JOIN or LEAVE the list from this web page.
> >
>
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>
> You can JOIN or LEAVE the list from this web page.

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