I've seen the responses to the enquiry about the Contact a Family
Directory. I'm very pleased that the directory is thought to be very
useful and I would like to take the opportunity to post an update. The
directory now has a growing number of adult onset entries and further
information on the adult experience of child onset disorders. There is a
rolling review programme and there are now only four texts dated before
1997. This year has seen 40 new entries and 35 re-writes of over 100
reviewed and re-approved, or amended, texts. The CD-ROM has the added
value of links from entries to the online Mendelian Inheritance in Man,
the US National Library of Medicine and the National Institutes of
Health; this is a on going programme and more quality links will be
added. Contact a Family is a charity and the directory is at the core of
our work to support families of disabled children and provide
information to adults with rare disorders.
Diane Barnett - Information Officer
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Direct Line 020 7608 8714
Contact a Family web site - http://www.cafamily.org.uk
For families with disabled children
Helpline 0808 808 3555 free for parents and carers
Minicom 020 7608 8702
General e-mail: [log in to unmask]
209-211 City Road
London
EC1V 1JN
Tel 020 7608 8700
Fax 020 7608 8701
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Registered Office: 209-211 City Road, London EC1V 1JN
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