Many thanks to those who sent suggestions, which will all be relevant. I've
listed them below (in no particular order)- they are an interesting range,
too!
Jones R. Developments in consumer health informatics in the next decade.
Health Libraries Review 2000;17:26-31.
(thanks to Ray Jones)
S. Henderson and Alan Petersen (eds) 'Consuming Health: The
Commodification of Health Care', Routledge 2001.
A new book which covers a range of topics on policy making, experiences
of health care, and health care delivery in Australia, the UK and Canada.
(thanks to Anne Akeroyd)
http://www.medicdirect.co.uk
http://www.patient.co.uk
http://www.netdoctor.co.uk
http://www.surgerydoor.co.uk
http://www.nhsdirect.nhs.uk
http://www.wellbeing.com
http://www.bbc.co.uk/health
http://www.channel4.com/healthhouse
http://www.pocketdoctor.co.uk
http://www.drfoster.co.uk
http://www.medicineplanet.com
(thanks to Mark Duman)
Baker, GC. (1991) Writing easily read patient education handouts: a
computerized approach. Semin Dermatol, June 10(2) 102-6
Bray, SA. Summings, C. Peduzzi, T. (1989) A comprehensive system to enhance
the staff role in patient education. Journal of Nursing Staff Development,
November-December, 5(6) 261-4.
Charnock, D. Shepperd, S. Needham, G. Gann, B. (1999) DISCERN: an instrument
for judging the quality of written consumer health information. Journal of
Epidemiology & Community Health, 53(2) 105-111. (also on DISCERN website at
http://www.discern.org.uk/journalepidemiology.htm, accessed 1.5.2002)
Charnock, D. (1999) The DISCERN handbook; quality criteria for consumer
health information. Radcliffe Medical Press; Abingdon.
Coulter, A. et al (1998) Informing patients : an assessment of the quality
of patient information materials. King's Fund; London. ISBN: 1857172140
Department of Health. (1991) The Patient's Charter. Department of Health,
London.
Department of Health. (1997) New NHS : Modern and Dependable. Stationery
Office, London.
Department of Health (1999) Saving lives: our healthier nation. Department
of Health, London.
Dixon, E. Park, R. (1990) Do patients understand written health information?
Nurse Outlook, Nov-Dec 38(6) 278-81.
Duman, M. Farrell, C. The POPPi guide: practicalities of producing patient
information. London, King's Fund.
Entwistle, VA. (1996) Supporting consumer involvement in decision making:
what constitutes quality patient information? International Journal of
Quality in Health Care, 8; 425-437.
Eysenbach, G. (1999) Shopping around the internet today and tomorrow:
towards the millennium of cybermedicine. British Medical Journal, 319,
1294. http://www.bmj.com/cgi/content/full/319/7220/1294 (accessed 1.5.2002)
Kenny, T. (2000) UK patient information on the internet. Health information
on the internet. February, 13; 4-5. (accessed 1.5.2002 via archive at
http://www.hioti.org/)
Kripalani, S (1995) The write stuff. Simple guidelines can help you write
and design effective patient education materials. Tex Med, Aug 91(8) 40-5
Maynard, AM (1999) Preparing readable patient education handouts. J Nurses
Staff Development Jan-Feb 15(1) 11-8
Mathis, DB. (1989) Writing patient education materials. Orthop Nurs Sep-Oct
8(5) 39-42.
Mackay, D. (2000) Consumer health information. P69-86 In Booth, A & Walton,
G (2000) Managing knowledge in health services. London, Library Association.
ISBN:1856043215
Mclver, S. (1999) So you think you know it all? Health Service Journal, 16
September, 22-23.
NHS Executive. (1998) Information for health: an information strategy for
the modern NHS 1998-2005. NHS Executive, Leeds.
NHS Executive. (1996) Patient partnership: building a collaborative
strategy. NHS Executive, Leeds.
Nicholas, D. Huntington, P. Williams, P. (2000) Digital health information
provision for the consumer: analysis of the use of web kiosks as a means of
delivering health information. Health Information on the Internet, October,
number 17, 9-11. (accessed 1.5.2002 via archive on http://www.hioti.org/ -
direct url http://www.rsm.ac.uk/hii/toc17.htm
Patterson, C. Teale, C. (1997) Influence of written information on patients'
knowledge of their diagnosis. Age Ageing, Jan 26(1) 41-2
Richardson, K. Moran, S. (1995) Developing standards for patient
information. Highlights that effective communication can improve health care
delivery. International Journal of Health Care Quality Assurance, 8(7)
27-31.
Sandler, DA. (1989) I listen, I forget, I read, I remember. Information
booklets for patients. Irish Medical Journal, Dec 82(4) 148.
Sheppard, S. Charnock, D. Gann. B. (1999) Helping patients access high
quality health information. British Medical Journal, 18 September, 319
p764-766. http://bmj.com/cgi/content/full/319/7212/764 (accessed 1.5.2002)
Weber, M (1998) Preparing readable patient education handouts. Journal of
Clinical Oncology, June 16(6) 2283
Wellcome Library. (2000) Databases for health consumers. Wellcome Trust.
http://www.wellcome.ac.uk/en/1/misinfrechecdbs.html (accessed 1.5.2002)
Welsh, S. (1996) Patient information on the web: a doctor on your desktop?
Ariadne, http://www.ariadne.ac.uk/issue5/omni-corner/ (accessed 1.5.2002)
Williamson, C. (2000) Consumer and professional standards: working towards
consensus. Quality in Health Care 9; 190-194.
(thanks to Caroline Miller, who compiled this in June 2001- what a list! I
have checked the urls are still available, and added a couple. The Dept of
Health papers will also be free fulltext on the internet, of course.)
I'll be doing some more hunting around, but this gives me a flying start!
By the way, the 18 Sept 1999 BMJ at http://bmj.com/content/vol319/issue7212/
has a range of relevant articles, as does the 9 Mar 2002 at
http://bmj.com/content/vol324/issue7337/ which you'll have seen recently.
And the content and links from http://www.hiquality.org.uk/ have some
relevant info.
Thanks again, everyone! I'm now on leave, but if I get any more suggestions
I will forward them on my return.
Fiona
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