Dear All
Here is a synthesis/collection of email replies to the JISC mailing list
about Cancer and Ethnic Minorities.
1. I am working with Dr Papadopoulos on a pilot study exploring the
personal health beliefs and experiences of six cancer sufferers and
their carers from different ethnic groups. We have collected literature
on cancer and minority ethnic populations so if there is anything
specific you are interested in please let me know.
With regards
Shelley Lees
Research Fellow
Research Centre for Transcultural Studies in Health
School of Health, Biologicial & Enviromental Sciences
10 Highgate Hill
London N19 3UA
Tel: 0208 362 5283
Fax: 0208 362 6106
2. Thanks for your email. Cancer Equality is a new organisation working
towards
providing information and support services to people from BEMs affected by
cancer. You can direct any queries to:
Meena Patel
Chair
Cancer EQuality
020 8542 7120
[log in to unmask]
Hope that is helpful
Regards
Rizwana Altaf
Cancer Network Project Manager
tel: 020 8315 8369
3. The folowing might be some useful contacts:
Veena Bahl, Advisor in ethnic minority health, DOH, LONDON.
CAROL BAXTER, <italic>Cancer Support and Ethnic Minority and Migrant
Worker communities,</italic> Cancer Link,
Cancer Support and Needs of Asian women in Sscotland: A Needs
Assessment Study
Cancer link, May 1999
Phillip Crowley, A Report on Quality of Care and access to
services for members of the Black and Ethnic Minority Community
in Newcastle Upon Tyne.
[log in to unmask]
I myself, alongwith Professor Ahmad and other colleagues am
working on a CRC funded study looking into the experiences of
South Asian and white patients with advance cancer. We are in
the process of analysing and writing. A summary of the findings is
expected to be available sometime in July. As part of the
dissemination, we are holdiing a one day conference in October, in
Leeds, and a half day event in Leicester. please let me know
whether you or your colleagues might be interested and we can put
you on our mailing list.
Please feel free to contact in case you wish to discuss your work.
With best wishes.
Sangeeta Chattoo
Research Fellow
CRPC
Hallas Wing
Nuffield Institute for Health
71-75 Clarendon Road
Leeds LS 2 9PL
4. it may be worth speaking to cancerlink - a few years ago they were doing
some work and had appointed someone.
Vijay Patel
5. I asume you have been in touch with the national Council for Hospices and
Specilaist Pallaitive care;
also contact Lalitha Webb- [log in to unmask]
Erica Young - [log in to unmask]
Myton Hamlet Hospice
Myton Lane
Myton Road
Warwick CV34 6PX
02476 340 035/0410 632 078 Fax: 02476 370 994
who have led the nationally funded project on pallitiv care serices for
black and mioroty thinc comomniiites; finally there is a recently
established voluintary orgnsation providing patint information about cancer
for balck and miniorty ehtinc patietns - Cancer Equality, contact: Mina
Patel c/o AFIYA Trust (sorry I don;t have the detailed address).
Su Kingsley
Department of Health
6. Contact Dr Liz Kernohan, Bradford Health Authority (01274) 366007 or
Sandra
Hunton, Cancer Support (01274) 776688
Either may be able to help?
Imran
7. Bhopal R S, Rankin J. Cancer in minority ethnic populations: priorities
from
epidemiological data. Br J Cancer 1996;74:S22-S32
this whole issue of the British Journal of cancer is on this topic.
I would be grateful for a copy of your eventual bibliography
Raj Bhopal
8. One suggestion is Jennifer Layburn, Information Officer at Cancer
Black Care. [log in to unmask] 020 7249 1097
Elizabeth
Professor Elizabeth N Anionwu, RN HV Tutor PhD
Head of the Mary Seacole Centre for Nursing Practice
Wolfson Institute of Health Sciences,
Thames Valley University, Westel House
32-38 Uxbridge Road, Ealing, London W5 2BS
Tel: +44 (0)20 8280 5109 Fax: +44 (0)20 8280 5125
http://www.maryseacole.com
9. You could try Carol Baxter, [log in to unmask]
She's the professor of health services research.
best wishes,
Maggie
10. See:
British Journal of Cancer 1996;74(Supplement) - This was the output of a
conference sponsored by CRC on cancer in ethnic minorities.
And Contact Jean King at CRC in London ("Jean KING" <[log in to unmask]>)
Hope this helps.
Martin...
----------------------------------------------------
Dr Martin White
Senior Lecturer in Public Health
Health Promotion Research Group
Department of Epidemiology & Public Health
School of Health Sciences
The Medical School
University of Newcastle upon Tyne
NE2 4HH
United Kingdom
Telephone: +44 (0)191 222 6275
Fax: +44 (0)191 222 8211
Visit our departmental WWW site at:
http://www.ncl.ac.uk/deph/
11. I was commissioned last week by Luton Health Action Zone to carry
out a needs assessment of cancer services for minority ethnic
groups. The work also involves obtaining the communities'
perspectives on developing appropriate cancer services and cancer
information. We've got until the end of October to complete the work.
It would be useful if we could pool resources and share information
on relevant literature and models of good practice in the UK. I'm
waiting for information from the Cancer Research Campaign and an
organisation called Cancer Black Care.
I would be grateful if you could forward on any responses to your
request for literature in the area.
All the best
Gurch
Gurch Randhawa
Principal Research Fellow
Institute for Health Services Research
Faculty of Health Care and Social Studies
University of Luton
St Nicholas House
15-17 George Street
Luton
Bedfordshire
LU1 2AF
England
Tel: 01582 743797
Fax: 01582 743771
e-mail: [log in to unmask]
12. hesitating slightly, we have just done a full literature review and are
writing it up, plus a project researching palliative carre for bme people
with cancer... ongoing. watch this space, but ideas of good practice
welcomed
here too...
mark johnson
mary seacole research centre
266 london road
de montfort university
leicester
le2 1rq
tel 0116 201 3906
A BIG THANKYOU to all colleagues who replied. I was pleasantly surprised by
the volume of work currently committed and hope that everyone finds the
collation above both acceptable and useful.
Best wishes,
Abdul.
Abdul Razzaq
Specialist in Public Health
Liverpool Health Authority
Hamilton House
24 Pall Mall
Liverpool
L3 6AL
Tel: 0151 285 2305/2254
Email (work): [log in to unmask]
Email (home): [log in to unmask]
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