> I have recently compiled a list of consumer health information sources as
> an information paper and I thought members list-medical may find it
> useful. I have copied the contents into this email. Any suggestions of
> additional sources are most welcome.
>
> Caroline Miller MA
> Senior Information Officer
> Information Resource Centre
> Research and Clinical Effectiveness Unit
> Chartered Society of Physiotherapy
> 14 Bedford Row
> London
> WC1R 4ED
> http://www.csp.org.uk
> Tel: 020 7306 6619
> Fax: 020 7306 6611
>
> SOURCES OF CONSUMER HEALTH INFORMATION
>
> Contents
>
> *     Introduction
>
> *     Organisations
>
> *     Reference Books and directories
> *     Libraries
>
> *     Statistical information
> *     Databases
>
> *     World Wide Web
> *     Websites and Internet gateways
> *     Electronic mailing lists
>
> *     Physiotherapy related websites
>
> *     Health news
>
> *     CSP Publications
>
> *     Bibliography
>
>
> Organisations
>
> College of Health
> The College of Health is a national charity set up to represent the
> interests of patients and promote patient-centred care. The college aims
> to help people keep themselves healthy and look after themselves better
> when they are ill, give information to people who use and work in the NHS
> to help them make the best use if it, encourage and help providers of
> health care to put patients' needs first, improve the quality and
> responsiveness of services through consumer audit and research, train
> people in consumer based research techniques and user involvement and
> represent the interests of health service users to policy makers.
> St Margaret's House, 21 Old Ford Road, London, E2 9PL
> Telephone: 020 8983 1225
> Email: [log in to unmask]
> Internet: http://homepages.which.net/~collegeofhealth/who.htm
>
> Contact a family
> Contact a Family (CaF) provides support and advice to parents whatever the
> medical condition of their child.  The website includes a directory of
> specific conditions and rare disorders. If information is not available on
> the website it is still worth contacting CaF as they may have information.
> Contact a Family, 170 Tottenham Court Road, London W1T 7HA
> Telephone: 020 7383 3555 (Contact Line)
> Email: [log in to unmask]
> Internet: http://www.cafamily.org.uk/
>
> Consumer Health Information Consortium (CHIC)
> CHIC is a unique, autonomous organisation for those interested in the
> provision of health information to the public. CHIC is a support
> organisation which provides training, encourages good practice and
> promotes the principle of free, open access to health information for all.
>
> Email: [log in to unmask]
> Internet: http://omni.ac.uk/CHIC/
>
> CHIQ - Centre for Health Information Quality
> The Centre for Health Information Quality (C-H-i-Q) works with information
> producers and providers to raise standards in consumer health information.
> CHIQ is working to ensure that all patient information is clearly
> communicated, is evidence based and involves patients throughout
> production.
> Highcroft, Romsey Road, Winchester, Hampshire, SO22 5DH
> Tel: 01962 849100
> Internet:  http://www.hfht.org/chiq/index.htm
>
> Consumers' Association
> 2 Marylebone Road
> London NW1 4DF
> Tel: 020 7830 6000
> Fax: 020 7830 6220
> E-mail: [log in to unmask]
>
> Department of Health
> PO Box 777
> London
> SE1 6XH
> Internet: http://www.doh.gov.uk
>
> General Consumer Council for Northern Ireland
> Elizabeth House, 116 Holywood Road, Belfast, BT4 1NY
> Tel 028 9067 2488
> Email: [log in to unmask]
>
> Health Promotion England
> Health Promotion England develops and delivers public education campaigns
> and health promotion in key areas of health policy; alcohol, children and
> families, drugs, immunisation, older people and sexual health.
> 40 Eastbourne Terrace, London, W2 3QR
> Tel: 020 7725 9030
> Internet: http://www.hpe.org.uk/
>
> Help for Health
> The Help for Health Trust is the leading supplier of consumer health
> information in the United Kingdom. The Trust is an independent,
> not-for-profit charitable organisation based in Winchester, Hampshire and
> is at the forefront of providing a range of quality information services
> and database products to our customers and enquirers.
> Highcroft, Romsey Road, Winchester, Hampshire, SO22 5DH
> Telephone: 01962 849100
> Internet: http://www.hfht.org
>
> NHS Direct Online
> Telephone: 0845 4647
> Internet: http://www.nhsdirect.nhs.uk/
>
> Patients Association
> PO Box 935, Harrow, Middlesex, HA1 3YJ
> Telephone: 020  8423 9111
> Internet: http://www.patients-association.com/intro.htm
>
> Plain English Campaign
> This is an independent organisation fighting for crystal-clear language
> and against jargon, gobbledygook and other confusing language. This
> organisation may prove useful for people writing patient information.
> PO Box 3, New Mills, High Peak, SK22 4QP.
> Tel: 01663 744409
> Email: [log in to unmask]
> Internet: http://www.plainenglish.co.uk/
>
> Telephone helplines Association
> The Telephone Helplines Association is a registered charity which works
> with helplines to ensure that callers receive the highest quality
> response. A helpline search facility is available on their website.
> 4 Dean's Court, St Paul's Churchyard, London, EC4V 5AA
> Tel: 020 7248 3388
> Email: [log in to unmask]
> Internet: http://www.helplines.org.uk/
>
> Reference Books and directories
>
> Contact a Family. (2001) The CaF (Contact a Family) Directory of Specific
> Conditions and Rare Disorders. Contact a Family, London. (Contact details
> above)
>
> Garrill, S & Garill, J.  (2000) Directory of British Self Help Groups and
> Organisations. 6th edition. Moulton Printing of Highfield Road, Blackpool.
> £10.00. G-Text, FREEPOST NWW6775, BLACKPOOL FY4 3GA
> Email: [log in to unmask]
> Internet: http://www.doctor.gp/help/
>
> The directory contains details of over 820 British national self-help and
> support organisations covering more than 750 conditions and needs. It is
> alphabetically sorted, cross-referenced and indexed.
>
> Henderson, SPA et al. (1998) Directory of British Associations and
> Associations in Ireland. 14th ed. CBD Research Ltd. ISBN 0900246820.
>
> Patient's Association (2001) The Health Address Book - a directory of
> health support groups. 3rd Edition. Royal Society of Medicine Press ISBN
> 1853154555
>
> Reynard, KW (ed). (1998) Aslib Directory of Information Sources in the
> United Kingdom. 10th edition. 1998. ISBN 0851424090. Published by Aslib,
> the Association for information management, Staple Hall, Stone House
> Court, London, ECD3A 7PB. Internet: http://www.aslib.co.uk
>
> This book contains over 11,500 information sources in the United Kingdom
> comprising organisations on every imaginable topic and should be available
> in public libraries.
>
> The Voluntary Agencies Directory. (2000) NVCO Publications, London. ISBN
> 071991552X.
> This directory provides contacts in education and social service
> organisations, community support groups, contacts for voluntary work and
> international aid organisations.
>
> Libraries
>
> Find your local medical library
> National Electronic Library for Health
> http://library.bma.org.uk/html/libfind.html
> A useful directory of libraries in the United Kingdom.
>
> Core Resources Ltd. (1999) Core resources of healthcare information 1999.
> Core Research Ltd.  ISBN 0953481905. The aim of this guide is to provide
> up-to-date details of the main healthcare information resources available
> and relevant to the individual researcher and providers of the information
> in the UK.  Details of over 300 selected information resources have been
> included.
>
> Dale, P (ed). (1997) Guide to libraries and information sources in
> medicine and healthcare. The British Library, London. ISBN: 0712308393.
>
> Forrester, WH (ed). (2000) Directory of medical and healthcare libraries
> in the United Kingdom and the Republic of Ireland 2000-2001. Library
> Association, London.  ISBN: 1856043789
>
> Henderson, SPA et al. (1998) Directory of British associations and
> associations in Ireland. 14th ed. CBD Research Ltd. ISBN 0900246820.
> Madge, D. (2000) Directory of organisations in allied and complementary
> health care. British Library, London. ISBN 0712308547. After a general
> introduction to allied and complementary health care each chapter covers a
> specific area such as acupuncture, herbalism or reflexology with a brief
> description of the therapy and a list of information resources, that is
> associations or societies with brief details of their information
> holdings. The organisations for each therapy are listed by country. There
> is an index of organisations.
> McBurney, V. (1995) Guide to libraries in London. British Library, London.
> ISBN: 0712308210
>
> Wellcome Institute Library and Information Service
> The Wellcome Trust offers an extensive range of library and information
> services to the public, free of charge. Anyone with an interest in the
> history of medicine, or in current issues surrounding health, medicine and
> science, can access a wealth of information in the form of books,
> journals, databases, archives and manuscripts. The visual record of
> medicine is also well represented by a vast collection of prints,
> drawings, paintings, film, video and photographs.
> The Wellcome Building, 183 Euston Road, London NW1 2BE, UK
> Tel: 020 7611 8722
> Fax: 020 7611 8726
> Email: [log in to unmask]
> Internet: http://www.wellcome.ac.uk/en/1/lib.html
>
> Statistical information
>
> Department of Health Statistics & Surveys Homepage
> www.doh.gov.uk/public/stats1.htm
>
> Government Statistical Service
> http://www.doh.gov.uk/public/stats1.htm
>
> Statbase
> http://www.statistics.gov.uk/statbase/mainmenu.asp
>
> Office for National Statistics,
> The Library, Drummond Gate, 1 Drummond Gate, Pimlico, London SW1V 2QQ.
> Tel 01329 842511
> Internet: http://www.statistics.gov.uk
>
> Databases
>
> CHID - Combined Health Information Database
> http://www.chid.nih.gov/
>
> Health Source Plus
> This consumer health database provides information on many health topics
> including the medical sciences, psychology, food sciences and nutrition,
> childcare, sports medicine, health care law and general health. Available
> on CD-ROM or online by subscription from:
> EBSCO Subscription Services, Division Headquarters, Birmingham, AL USA
> Internet: http://www.epnet.com/database.html#hp
>
> HEBS Databases
> http://www.hebs.scot.nhs.uk/healthcentre/lib/lib.htm
> The Health Education Board for Scotland produce databases of health
> promotion projects, a leaflets catalogue, statistics and support groups
> which are all available on their website.
>
> MEDLINE Plus
> http://medlineplus.nlm.nih.gov/medlineplus/
> The National Library of Medicine's MEDLINEplus pages are designed to
> direct you to resources containing information that will help you research
> your health questions. They are designed for educational use only and are
> not intended to replace advice from a health professional. These pages
> provide a carefully selected list of resources, not a comprehensive
> catalogue. Contains dictionaries for definitions of medical terms, links
> on common diseases and conditions, publications and news for reading
> online, organizations providing information to consumers, a range of
> databases are available for articles and information (including MEDLINE)
> and clearinghouses from which information can be obtained.
>
> NHS A-Z Help Direct
> http://www.nhsatoz.org/nhsd/
> Help-Direct is a comprehensive, searchable database of self-help and
> support groups and organisations, covering the whole of the country,
> available to the public on the internet.
> Information is continually updated with local groups being added for many
> areas. GP, Pharmacy, Optical and Dentist information is also available for
> some areas.
>
> Websites and Internet Gateways
>
> American Medical Association Patient Information
> http://www.ama-assn.org/ama/pub/category/3158.html
>
> Biome
> http://www.biome.ac.uk
> BIOME is a collection of gateways which provide access to evaluated,
> quality Internet resources in the health and life sciences, aimed at
> students, researchers, academics and practitioners.
>
> Charities Direct
> http://www.caritasdata.co.uk/
> CharitiesDirect is a FREE web service featuring financial and contact
> information on the UK's top 10,000 charities.
>
> Charity Choice
> http://www.charitychoice.co.uk/
> The encyclopaedia of charities on the internet.
>
> Charity Commission
> http://www.charity-commission.gov.uk/
> The Charity Commission is here to give the public confidence in the
> integrity of charities in England and Wales. Includes a section on advice
> and publications.
>
> Cochrane Collaboration Consumer Network
> http://www.cochraneconsumer.com/
>
> Department of Health Helplines
> http://www.doh.gov.uk/phone.htm
>
> DIRLINE
> http://sis.nlm.nih.gov/dirline/
> DIRLINE (Directory of Information Resources Online) is the National
> Library of Medicine?'s (US) online database containing location and
> descriptive information about a wide variety of information sources
> including organisations, research resources, projects, databases, and
> electronic bulletin boards concerned with health and biomedicine.
>
> Discern
> http://www.discern.org.uk/
> DISCERN is a brief questionnaire which provides users with a valid and
> reliable way of assessing the quality of written information on treatment
> choices for a health problem.
> DISCERN can also be used by authors and publishers of information on
> treatment choices as a guide to the standard which users are entitled to
> expect.
>
> Health Finder
> http://www.healthfinder.org/
> healthfinder® is a free gateway to reliable consumer health and human
> services information developed by the U.S. Department of Health and Human
> Services. Information is provided on online publications, clearinghouses,
> databases, web sites, and support and self-help groups, as well as the
> government agencies and not-for-profit organizations that produce reliable
> information for the public.
>
> Health Helplines in Scotland
> http://www.scotland.gov.uk/faq/hth-free.asp
>
> Health on the Net
> http://www.hon.ch/
> The Health On the Foundation Organization mission is to guide lay persons
> or non-medical users and medical practitioners to useful and reliable
> online medical and health information.
>
> Health in Focus
> http://www.healthinfocus.co.uk/
> HEALTHINFOCUS has been designed to be freely accessible to everyone
> wishing to access unbiased, trustworthy health information. It aims to
> provide facts about a disease, how you can expect to be treated, the level
> of medical care you can expect and the treatments you are likely to
> receive in the UK.
>
> Health insite
> http://www.healthinsite.gov.au
> This site aims to provide a wide range of up-to-date and quality assured
> information on health topics.
>
> Health Promotion Agency (Northern Ireland)
> http://www.healthpromotionagency.org.uk/
> The Health Promotion Agency for Northern Ireland (HPA) was set up as a
> special agency of the Department of Health, Social Services and Public
> Safety with the mission to make health a top priority for everyone in
> Northern Ireland.
>
> Health Watch by Medscape
> http://healthwatch.medscape.com/medscape/p/gcommunity/ghome.asp
> CBSHealthWatch is committed to providing authoritative medical content
> written for the consumer as well as access to our professional-level
> content.
>
> Healthworks Online
> http://www.healthworks.co.uk/
> Healthworks delivers a range of health and medical information for medical
> professionals and Internet content providers. Services include;
> </content/medsource/index.asp> custom built medical content for your web
> site or Internet driven projects, a medical CD-ROM collection on the web,
> computer aided learning packages, MEDLINE and latest medical news.
>
> Healthtouch
> http://www.healthtouch.com/
> A resource that brings together valuable information from trusted health
> organizations.
>
> HealthWeb
> http://healthweb.org/
>
> InteliHealth
> http://www.intelihealth.com
>
> Medisearch
> http://www.medisearch.co.uk/
> Mirago Health is a search engine aimed at providing a specialist,
> searchable index of Authoritative UK and International Medical sites.
>
> Medical Matrix
> http://www.medmatrix.org
> Medical Matrix is a free directory of selected medical sites on the
> Internet. Each site listing has been carefully evaluated by reviewers from
> our panel of physicians and medical librarians. Medical Matrix lists only
> those sites that meet criteria for information quality and site usability,
> with an emphasis on usefulness to healthcare practitioners.
>
> National Association of Citizen Advice Bureaux
> http://www.nacab.org.uk/
>
> National Council for Voluntary Organisations
> http://www.ncvo-vol.org.uk/
>
> National Electronic Library for Health (NeLH)
> http://www.nhs.uk/nelh/
> The role of the NeLH will be to provide health care professionals and the
> public (through NHS Direct Online and the New Library Network) with
> knowledge and know-how to support health care related decisions. NeLH will
> provide easy access to best, current knowledge and know how, improve
> health and healthcare, clinical practice and patient choice.
>
> National Electronic Library for Health (NeLH) Physiotherapy Portal
> http://www.nhs.uk/nelh/physio
>
> National Health Promotion Agency website for Wales
> http://www.hpw.org.uk/
>
> National Institutes for Health - Consumer Health Information (US)
> http://www.nih.gov/health/consumer/
> This website provides access to patient focused leaflets on a variety of
> topics.
>
> NHS Direct Online
> http://www.nhsdirect.nhs.uk/
> The NHS is committed to providing quicker and easier access to healthcare
> services. NHS Direct is a 24-hour nurse-led helpline providing
> confidential healthcare advice and information on: what to do if you're
> feeling ill, health concerns for you and your family; local health
> services and self-help and support organisations.
>
> NHS A to Z Help Direct
> http://www.nhsdirect.nhs.uk/a-z/
> NHS A-Z HelpDirect is used by health and social care professionals, the
> voluntary sector, helplines and health information services, human
> resource managers and the public. It is available on the Internet as part
> of NHS Direct Online and also as a stand-alone site.
>
> Netdoctor
> http://www.netdoctor.co.uk/
> NetDoctorPro is a premium resource for UK doctors and health professionals
> with unlimited access to some of the world's most valuable databases and
> health resources.
>
> NMAP
> http://www.nmap.ac.uk
> A gateway of quality internet sites in nursing and allied health
>
> OMNI (Organising Medical Networked Information)
> http://www.omni.ac.uk
> A gateway of quality internet sites in the area of medicine
>
> Online National Institutes of Health - Consumer Health Publications
> http://www.nih.gov/health/consumer/conicd.htm
>
> Patient UK
> http://www.patient.co.uk
> Patient UK is a directory of UK websites that provide information on
> health, disease and illness. The aim is to list the most reputable and
> reliable sources of UK health information
>
> Public and Patient Information
> http://www.oliveweb.clara.net/n17pubin.htm
> This website provides a list of links to public and patient information
> including self help groups.
>
> Quackwatch
> http://www.quackwatch.com/
> Quackwatch is a nonprofit corporation whose purpose is to combat
> health-related frauds, myths, fads, and fallacies
>
> Rockerfeller Medical Library Patient Support Information
> http://www.ion.ucl.ac.uk/library/patient/patient-support.html
>
> Surgery Door
> http://www.surgerydoor.co.uk/surgerydoor/
> The aim of this website is to provide the most comprehensive and useful
> online health service in the UK and to offer this free of charge to UK
> citizens.
>
> Quick - Quality Information Checklist
> http://www.quick.org.uk/
>
> UK Health Centre - The guide to UK medical Information on the web
> http://www.healthcentre.org.uk
> The Health Centre aims to be a guide  through the huge amount of medical
> and health information from the UK that is available on the internet.
>
> Virtual Encyclopaedia of Health and Medicine
> http://www.refdesk.com/health.html
>
> WHICH? Online
> http://www.which.net/health/contents.html
> Includes a specific section on health comprising treatments, drugs, the
> NHS, nutrition advice - our information will keep you well-informed about
> healthy living.
>
> Wired for Health
> http://www.wiredforhealth.gov.uk
> This website aims to provide accurate and engaging information on health
> for teachers and learners, to provide information on the Healthy Schools
> Programme, a joint initiative between the Department of Health and the
> Department for Education and Employment and to provide information about
> national health policies and initiatives.
>
> YAHOO: Health & Medicine
> http://www.yahoo.com/Health/Medicine
>
> Mailing lists
>
> Consumer Health Informatics
> http://www.jiscmail.ac.uk/lists/consumer-health-informatics.html
>
> Physiotherapy related websites
>
> Chartered Society of Physiotherapy
> http://www.csp.org.uk
> The CSP website includes a member centre, health centre, media centre,
> careers information, information about the CSP, the library, publications
> and jobs.
>
> PhysioFirst
> http://www.physiofirst.org.uk
> This is the site for the Organisation of Chartered Physiotherapists in
> Private Practice and it is possible to find a physiotherapist in different
> areas by searching on this site.
>
> PTGlobalNet
> http://ptglobal.net/
>
> Physical Therapist.com
> http://www.physicaltherapist.com
> This  American site includes mailing lists, a library, events, courses,
> jobs and a bulletin board.
>
> Physical Therapy : the web space
> http://www.automailer.com/tws/
> This site includes; texts and journals, schools, organisations, diseases
> and injuries and electronic discussion lists.
>
> Physiobase
> http://www.physiobase.com
> This site includes information on courses, jobs, a library, a directory
> and chat.
>
> Physiosonline
> http://www/physiosonline.com
> This site includes information on courses, jobs, news and links.
>
> Health News
>
> BBC Health and Fitness
> http://www.bbc.co.uk/health/
>
> CBS Health watch by Medscape
> http://healthwatch.medscape.com/medscape/p/gcommunity/ghome.asp?.
>
> HealthComms Online - the free email newsletter on health communications
> http://www.healthcomms.com/
> Professionals involved in communicating health messages to patients and
> the public need to stay in touch with the most important developments in
> health communications.
>
> Reuters Health
> http://www.reutershealth.com/
>
> Medscape
> http://www.medscape.com/
>
> Doctor's Guide
> http://www.docguide.com/
>
> Health news
> http://www.health-news.co.uk
>
> CSP Publications
>
> A range of publications are produced by different departments at the
> Chartered Society of Physiotherapy. The Communications Department produce
> a range of patient education leaflets. For an up to date list of these
> leaflets telephone the Communications Department on 020 7306 6620. The
> Health Centre on the CSP website is also a useful source of information
> http://www.csp.org.uk. For other CSP publications see the Electronic
> Library section on the CSP website or request a publications list from the
> CSP.
>
> Bibliography
>
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> Development, November-December, 5(6) 261-4.
>
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> instrument for judging the quality of written consumer health information.
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> Charnock, D. (1999) The DISCERN handbook; quality criteria for consumer
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>
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