1. I would like to draw your attention to the eHealth Code of Ethics:
http://ihealthcoalition.org/ethics/ethics.html - or:
Rippen H, Risk A, for the e-Health Ethics Initiative. e-Health Code of
Ethics. Journal of Medical Internet Research 2000;2(2):e9
URL: http://www.jmir.org/2000/2/e9/
2. I recently completed a review of 13 self-regulatory quality
initiatives for the World Health Organization. This research is to be
published shortly in J Medical Int Res <http://www.jmir.org>
3. The European Commission has published its draft guidelines for
quality of health information on the internet:
http://europa.eu.int/information_society/eeurope/ehealth/quality/index_e
n.htm
4. There is an accreditation process esatblished by URAC for health
internet websites: http://www.urac.org
5. Hi-Ethics: http://www.hiethics.com
6. The work of Gunther Eysenbach et al at the MedCERTAIN project:
http://www.medcertain.org
There are many others but the above are major initiatives.
Ahmad Risk
WHO
Geneva
(Declaration of interest: I have been involved with all of the above)
> -----Original Message-----
> From: For developers/evaluators of computerised info for
> patients/public. [mailto:[log in to unmask]]On
> Behalf Of McLean, Fiona
> Sent: 19 October 2001 17:14
> To: [log in to unmask]
> Subject: Internet info
>
>
> Apologies for crossposting
>
> I'm getting to realise that a lot of colleagues share my interest in
> internet quality and/or consumer health info on the internet.
> So I'm passing
> on some info in case relevant- apologies if already well known to you.
>
> 1. Medline indexing has its moments, but articles relevant to internet
> quality are usually indexed so that you pick them up on
> PubMed if you search
> with:
> internet/standards[MeSH]
> Note you need to use square brackets. This wont pick up
> recently published
> things in Premedline, as they havent been indexed.
> Links on the first page include one to interesting recent one (and
> responses) by Smith in the BMJ (with free link to full text,
> of course-
> thanks BMJ!) BMJ has a subject collection on the www at
> http://bmj.com/cgi/collection/WWW
>
> 2. Two good books out this year, written by UK LIS profs very
> expert in this
> area:
> * Robert Kiley et al (Oct 2001)The patient's internet
> handbook. RSM press
> (see www.patient-handbook.co.uk) (also cheap!)
> * Sue Welsh et al (2001) Finding and using health and medical
> information on
> the internet. Aslib publications (see
> http://www.aslib.co.uk/pubs/2001/07/02.html)
>
> 3. Mailing lists:
> *consumer-health-informatics may be relevant. See
> http://www.jiscmail.ac.uk/lists/consumer-health-informatics.html
> *For UK people, there is Consumer Health Information Consortium
> http://omni.ac.uk/CHIC/ (subscription needed) whose services include a
> mailing list at http://www.mailbase.org.uk/lists/con-healthinc/
>
> 4. There are *3* publications with names like 'health
> (information) on the
> internet'....! One I find very good is 'He@lth Information on
> the Internet'
> see http://www.hioti.org/ (print and e versions).
> Unfortunately, there's no
> longer free full-text on the internet for non-subscribers, tho you can
> access older issues and a free recent sample issue.
>
> 5. Searching: I start with OMNI http://omni.ac.uk (UK) but
> there are also
> other nationally funded gateways to quality-checked resources
> (with local
> and usually international coverage) eg
> Health on the Net http://www.hon.ch
> (Switzerland) (also has
> Code for web sites)
> Healthfinder http://healthfinder (USA)
> HealthInsite http://www.healthinsite.gov.au (Australia)
> Canadian Health Network
> http://www.canadian-health-network.ca/ (Canada)
>
>
> If anyone else has good ideas (preferably free!) for keeping
> up to date in
> this area, please let me and/or the list know? I wont be able
> to *answer*
> any emails for a while, so thanks in advance.
>
> Fiona
>
> Fiona McLean
> Health care information officer
> British Library
> [log in to unmask]
> Webpages: http://www.bl.uk/health (but not all up-to-date as
> our webpages
> are 'frozen' pending a new design!)
>
>
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